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Coping and support

By Mayo Clinic staff

As with any serious and chronic disease, you may experience many emotional side effects from living with aplastic anemia. Tips to help you and your family better cope with your illness include:

  • Research your disease. The more you know, the better prepared you'll be to make treatment decisions.
  • Ask questions. Be sure to ask your doctor about anything related to your disease or treatment that you don't understand. It may help you to record or write down what your doctor tells you.
  • Be vocal. Don't be afraid to express any concerns you have to your doctor or any other health care professional treating you.
  • Seek support. Ask family and friends for emotional support. Ask them to consider becoming blood donors or bone marrow donors. Consider joining an aplastic anemia support group. It may be helpful to talk to others coping with the disease. Ask your doctor if he or she knows of any local support groups, or contact the Aplastic Anemia & MDS International Foundation. They offer a peer support network and can be reached at 800-747-2820.
  • Take care of yourself. Proper nutrition and sleep are important to optimize blood production.
References
  1. Aplastic anemia. National Heart, Lung, and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/aplastic/aplastic_all.html. Accessed Feb. 5, 2009.
  2. Aplastic anemia. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merck.com/mmpe/sec11/ch130/ch130f.html#sec11-ch130-ch130e-91. Accessed Feb. 5, 2009.
  3. Young NS. Aplastic anemia. Current Opinion in Hematology. 2008;15:162.
  4. Schrier SL. Aplastic anemia: Pathogenesis; clinical manifestations; and diagnosis. http://www.uptodate.com/home/index.html. Accessed Feb. 5, 2009.
  5. Schrier SL. Aplastic anemia: Prognosis and treatment. http://www.uptodate.com/home/index.html. Accessed Feb. 5, 2009.
  6. Shih RD. Plants, mushrooms, and herbal medications. In: Marx JA, et al. Rosen's Emergency Medicine: Concepts and Clinical Practice. 6th ed. Philadelphia, Pa.: Mosby Elsevier; 2006. http://www.mdconsult.com/das/book/body/119296292-3/801134565/1365/515.html#4-u1.0-B0-323-02845-4..50167-0--cesec32_8318. Accessed Feb. 6, 2009.

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March 27, 2009

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