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Coping and support
By Mayo Clinic staffThe challenges you face when living with ataxia, such as loss of independence, or having a child with the condition, may make you feel alone or lead to depression and anxiety. Talking to a counselor or therapist may lessen your sense of isolation and help you cope. Or you may find encouragement and understanding in a support group, either for ataxia or for your underlying condition, such as cancer or multiple sclerosis.
Although support groups aren't for everyone, they can be good sources of information. Group members often know about the latest treatments and tend to share their own experiences. If you're interested, your doctor may be able to recommend a group in your area.
- NINDS ataxias and cerebellar or spinocerebellar degeneration information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm. Accessed Dec. 29, 2008.
- NINDS Friedreich's ataxia information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/friedreichs_ataxia/friedreichs_ataxia.htm. Accessed Dec. 29, 2008.
- NINDS Ataxia telangiectasia information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/a_t/a-t.htm. Accessed Dec. 29, 2008.
- Opal P, et al. The spinocerebellar ataxias. http://www.uptodate.com/home/index.html. Accessed Jan. 5, 2009.
- NINDS paraneoplastic syndromes information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/paraneoplastic/paraneoplastic.htm. Accessed Dec. 29, 2008.
- Jen JC, et al. Primary episodic ataxias: Diagnosis, pathogenesis and treatment. Brain. 2007;130:2484. Accessed Dec. 15, 2008.
- Ataxia telangiectasia: Fact sheet. National Cancer Institute. http://www.cancer.gov/cancertopics/factsheet/ataxiaqa. Accessed Jan. 11, 2009.
- FA beginner's primer. Freidrich's Ataxia Research Alliance. http://www.curefa.org/primer.html. Accessed Jan. 11, 2009.
- Adult ataxia information for patients and caregivers. Worldwide education and awareness for movement disorders. http://www.wemove.org/ataxia/. Accessed Jan. 11, 2009.
