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  • With Mayo Clinic health education outreach coordinator

    Angela Lunde

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  • Alzheimer's blog

  • Sept. 20, 2007

    Alzheimer's: Welcome to our new blog

    By Angela Lunde

279 comments posted

Welcome to our new blog from the Alzheimer's Center at MayoClinic.com. I am excited and encouraged about the possibilities we can create by this endeavor.

For many years at the Mayo Clinic's Alzheimer's Disease Research Center, I have been fortunate to facilitate groups for persons in the early stages of a dementia, as well as groups for their care partners.

Most often these care partners are husbands and wives, daughters, daughters-in-law, and sometimes sons, grandchildren and friends. Through this experience, I have discovered that the statement "about 5 million people are affected by Alzheimer's" is, in part, a myth. In truth, 5 million people may have the disease, but millions more are affected through the gradual loss of their spouse, partner, friend, confidant, and loved one.

Dementia, devastatingly, is a disorder that isolates those affected (both the person with the disease and their care partner). But in the modern world of MySpace, Facebook and other blogs, there is a new way to make connections, to reach out, to share common experiences such as grief, humor, despair, and hope. My belief is that this new blog can serve to bind us together on the shared journey we call Alzheimer's disease or other dementia. I invite you to share some part of your story and hear from others that you are not alone.

279 comments posted

blog index
  • October 21, 2009 8:13 a.m.

    just last week I told my friend that I must have Alzheimer because I can never remember anything and as I get older I am getting nervous that I will forget my daughters name like that other day I missed pronounced my daughters name and I just laughed it off like "I just gave you another name".I don't remember my childhood, I could not tell you the last movie that i'v seen nor what happened in it. In my mind I thought that only older people could get Alzheimer's. This is scary how could I go to a doc at 39yrs of age and tell them that I can't remember anything. This is embarrassing especially when I am at a time in my life that I am really trying to find myself and place on this earth.

    - effee

  • October 18, 2009 8:05 p.m.

    My mother is rapidly progressing thru stage "6". I don't want her suffering. I want to know if I should keep taking her to doctors and dentists for ailments not associated with her disease. She is not enjoying her life and is frustrated with her dementia. I want to keep her comfortable but I don't want to prolong her suffering. I just don't know how to handle this.

    - Jill

  • October 15, 2009 3:31 p.m.

    My husband who is 72 has AD for 3 years He is now getting very agitated mostly at family. I am his caregiver and getting ready for back surgery. The kids are afraid they will not be able to handle him. They are pushing me to do paperwork to have him put away. I handle him fine and not ready to make that move. I need someone who can give me some counsel other than family.

    - Brenda

  • October 1, 2009 1:26 p.m.

    My mother is 90 and has been in a nursing home since May of this year. She has dementia/Alzheimers. Her doctor says she should not live alone. She cries most of the time now and says she wants to go home and if she can't go home she wants to die. Has anyone else had this experience?

    - Deanna

  • September 29, 2009 4:06 p.m.

    I really enjoy the articles on this blog. After caring for my great grandfather for over a year I built the site AlzMall.com. I am really looking for those who are passionate about Alzheimer's care to contribute articles, stories, or just general information to my site.

    - Jerry

  • September 24, 2009 4:06 p.m.

    Just found out that my inlaws couldn't afford their medicine so they stopped buying Aricept for my mother-in-law a few months ago. Will it be effective for her to resume taking Aricept?

    - Doris

  • September 23, 2009 11:34 a.m.

    I found a great site where families can find a list of companies that makes tracking device’s for Alzheimer’s patients. Here is the web site address: www.elderoptionsoftexas.com/article_alzheimers_gps_tracking_devices.htm

    - Lynn

  • September 22, 2009 8:39 a.m.

    THIS WOULD BE AN INTERESTING RESEARCH STUDY!Recently read about a woman with an extraordinary memory who remembers just about everyday in her adult life. The key to her amazing memory was that she keeps going over & over her past as if she had an endless recording in her head, she also keeps very detailed records of her everyday life. On the other side are the people that do not spend much time thinking about the past, don't think that much about the present but spent most of their time thinking about everything in the future. My research question is: Has there been a comparative study on this two types of "memory"? Are people that are focused more on the past less prone to alzheimers vs those who do not use their memory to "record" their past but rather keep focused on the future?

    - George

  • September 20, 2009 6:23 p.m.

    One older women asked me if I would go to confession with her and I didn't think that it was appropriate. She was probably in her mid 70's. Do older people with Ad sometimes forget that we aren't in the Great Depression anymore?

    - Ian

  • September 20, 2009 6:20 p.m.

    Does anyone out there have older strangers in their 70's-90's ask you what you do and you find it annying? Someone who lives near my house posted a sign on a wodden poll near his houuse and it has his opinion kids should "Move Out" and "Pay as they go". That sign really distrubed me and caused me anxiety.

    - Ian

  • September 13, 2009 6:26 p.m.

    Great blog . Thanks http://alzheimersandmomblog.blogspot.com/

    - karen

  • September 8, 2009 2:14 p.m.

    My mothers caregiver is my father age 92. He talks to her and reads to her. She sits in a chair like she's sleeping, but she isn't. He says"Dotty" and she opens her eyes. I visit every few weeks and am grateful that she still knows me. I keep testing.

    - cheryl

  • September 7, 2009 9:25 a.m.

    September 7, 2009 M mom was diagnosed with Alzheimer's about 5 years ago and I know how difficult dealing with this disease is. I have used humor as a tool for getting through this time and I suggest that each of you out there do the same. Don't be afraid to admit to yourself and out loud that although you love your parent there are times when you have that thought that it would be easier for you and your family if they were not here anymore. I believe that it's OK to have these thoughs and express them. After all, it is true. Anyway, back to humor. I would like to story. My mom went through a very long stage of not wanting to shower. For a very long time I was the only person she would allow to help her (I was always a lucky gal). This gave other family members a great OUT and showering my mother helped me to stay on my diet. As I would take me mom into the bathroom to prepare her for her dreaded shower she would curse, yell and swear she took a shower the night before. One day, I remembered how my mom loved to sing the old tunes, she was actually a very good singer. As I began to undress her I asked her if she would sing the song April Showers with me and help me with the words. Well, Betty (my mom) started belting out the tune. Singing distracted her for brief moments. It went something like this... When April Showers (F You), May Come your Way (I took a shower last night) they bring the flowers (go F yourself) that bloom in May - you get the picture

    - Lisa

  • September 6, 2009 1:12 p.m.

    Despite the research that wages on, the etiology of AD is still unknown. The fact remains that AD is a profoundly isolating experience for the victim and the family members affected. With modern medical advances we are living longer than ever before. One risk factor that is not disputed is that advancing age increases the risk of developing AD. Most families affected know that AD is not a normal part of aging, but I am not clear if that fact is known across a cross-section of society at large. Ironically since we are able to live longer lives, we do not seem to pay much attention or honor our aged members of society. We are still a youth-driven culture. It is quite a sad statement. I do believe writing about the experience, in the form of blogs or memoir can provide a bit of hope and some form of a healing experience for those family members affected. My mother was diagnosed with AD in 1979, before the internet or the Alzheimer’s Association existed as we know it today. As a seventeen year old at the time, I am certain that I would have appreciated any information and connectedness the internet now offers. As a physician who has treated many patients with AD over the years, I know the devastating isolation remains a destructive force for all involved. I hope in the future to find even more information and support in the form of these blogs, and sincerely hope other health institutions follow Mayo’s example in providing this supportive blog.

    - Joseph

  • September 6, 2009 11:19 a.m.

    I meant to say thanks for all the great info. I need all the help I can get. http://alzheimersandmomblog.blogspot.com/

    - karen

  • September 6, 2009 11:17 a.m.

    thanks for all the ghttp://alzheimersandmomblog.blogspot.com/

    - karen

  • September 4, 2009 7:16 a.m.

    Blogging for caregivers is very helpful in maintaining their sanity and feelings of being productive. Check out this fledgling attempt to cope in a rural environment at http://hazidaze.blogspot.com/2009/08/keep-it-simple.html

    - Barb

  • September 4, 2009 1:12 a.m.

    Its really appreciable Task you people carrying out at your research center.Peoples caught in Alzheimer really need care and proper treatment. You said true that care partners for Alzheimer's patients are generally husbands and wives, daughters, daughters-in-law, and sometimes sons, grandchildren and friends. I found one article, according to that Intel Lab is developing a new care partner that is AI, AI to Assist Alzheimer's Patients. But i want to tell you one more Fact which i discover after a lot of searching and goggling and that is how to lower the risk of such diseases. Luckily i found it on " www.fuelthemind.com " under section Nutrition->nutrition_articles. That Article real informative and help peoples to avoid or lowering the risk of certain diseases such as Alzheimer. What will be the Best food for Brain? 1)Salmon and Sardine: Fatty fish oils. 2)Fitting the free radicals: Tomatoes. 3)B vitamin complex: Go for wholegrain.(Vitamins B6 B12 and folic acid) 4)Blueberry brain food. 5)Get your Zinc on: Pumpkin seeds. 6)Better than oranges for the brain: Blackcurrants. 7)Brain power foods - Gimmy' broccoli. 8)Lay it for me - Eggs.(Vitamin E). More info you can find there as i mention above.

    - Smith

  • September 3, 2009 12:36 p.m.

    My dear friend from HS is doing a memmory walk for her mom who has Alzheimer's. Please help her reach her goal. donate what ever you can. we must come up with a cure for this. http://memorywalk09.kintera.org/faf/donorReg/donorPledge.asp?ievent=302500&supid=262253889

    - Maureen

  • August 26, 2009 5:47 p.m.

    I need suggestions on how to deal with my Dad's smoking. They just moved into a retirement center last week. Their is a "smoking area" however my Dad is not wanting (or forgets) to go their. What suggestions can I give my Mom on how to correct or redirect this behavior. I need input before they get kicked out!

    - Susan

  • August 22, 2009 9:26 p.m.

    Good comments re the use of social media and how it can help both the person with Alzheimers and their family and friends. http://www.wired.com/medtech/health/news/2002/07/53815 has an interesting article on how blogging and other activities to keep alzheimers patients to keep active minds is helping slow down the progress of the disease for them. http://www.alzheimerssupport.net/

    - AlzheimersSupport

  • August 13, 2009 1:25 p.m.

    My 60-year old husband has started leaving things in weird places and is using strange words for familiar objects. Can't get through many sentences without messing them up in some way. Most alarming is what he does at night. I am jarred awake most nights by frantic movement, sheets on and off, getting up and down, slapping himself and strange jibberish talk. He never remembers when he wakes up. Could this be Alzheimer's?

    - Anne

  • August 12, 2009 10:02 a.m.

    I have lost 5 close family members with ALZ. All in 2 generations. So I live in fear of developing it myself. But one of my favorite memories is of my father. My mother who didn't drive loved to shop. So I would pick up my parents, drop Mom off and take leisurely drives with Dad. It was something he and I did when I was a young child. Dad was always a junk food fan. This one particular day. I asked my father if he would like chips, ice cream, candy or cookies. He answered yes. So I bought him all the above. I still don't know how he was able to consume it all. A half hour late we picked up my mother. At this point my father loudly requested, "Let's go for lunch, I haven't eaten in days...." He ate a full lunch.

    - Patti

  • August 7, 2009 6:23 p.m.

    My father probably has multi-infarct dementia and Alzheimer's. Lately my mother cannot get him to get up in the morning. It may be 2pm before he decides to get up. Then after he gets up, he may eat and then goes to his recliner where he goes horizontal. He is sleeping most of the day and he sleeps all night long as well. What is going on here?

    - Mary Ann in NC

  • August 5, 2009 3:33 p.m.

    I tried to turn off cable news not wanting to listen to Micheal Jackson's death on TV 24/7. My mother turned it on every 15 minutes - and every time she did she was SHOCKED that Micheal Jackson had died. Fror 2 weeks I listened to story after story about MJ and my mother hearing the news for the first time every 15 minutes. It actually got very funny.

    - Joanne

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