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Coping and support
By Mayo Clinic staffHaving an infant with craniosynostosis can be anxiety-producing and emotionally draining. Talking to families and people who are facing or have faced similar challenges can provide you with information and emotional support.
Ask your doctor about support groups in your community. If a group isn't for you, perhaps your doctor can put you in touch with a family who has dealt with craniosynostosis. Your local health department, public library, telephone book and the Internet also may be good sources for finding support in your area.
- Craniosynostosis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm. Accessed March 22, 2009.
- Stal S, et al. Overview of craniosynostosis. http://www.uptodate.com/home/index.html. Accessed March 23, 2009.
- Stal S, et al. Craniosynostosis syndromes. http://www.uptodate.com/home/index.html. Accessed March 23, 2009.
- Craniosynostosis and craniofacial disorders. American Association of Neurological Surgeons. http://www.neurosurgerytoday.org/what/patient_e/craniosynostosis.asp. Accessed March 27, 2009.
- SIDS: "Back to sleep" campaign. National Institute of Child Health and Human Development. http://www.nichd.nih.gov/sids. Accessed March 27, 2009.
