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Preparing for your appointment
By Mayo Clinic staffIn some cases, your child's doctor may suspect craniosynostosis at a routine well-child visit due to the disappearance of your baby's soft spots or because your baby's head isn't growing as it should.
In other cases, you may make an appointment because you suspect your child has craniosynostosis. As you prepare for this appointment, write down any signs or symptoms you've noticed, such as raised ridges or the absence of soft spots on your baby's head. It's also a good idea to write down any questions you have.
What to expect from your doctor
Your doctor is likely to have questions for you, as well. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
- When did you first notice the changes in your baby's head?
- How much time does your baby spend on his or her back?
- In what position does your baby sleep?
- Has your baby had any seizures?
- Is your baby's development on schedule?
- Do you have a family history of craniosynostosis or of genetic conditions, such as Apert's syndrome and Crouzon syndrome, that can cause it?
- Craniosynostosis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm. Accessed March 22, 2009.
- Stal S, et al. Overview of craniosynostosis. http://www.uptodate.com/home/index.html. Accessed March 23, 2009.
- Stal S, et al. Craniosynostosis syndromes. http://www.uptodate.com/home/index.html. Accessed March 23, 2009.
- Craniosynostosis and craniofacial disorders. American Association of Neurological Surgeons. http://www.neurosurgerytoday.org/what/patient_e/craniosynostosis.asp. Accessed March 27, 2009.
- SIDS: "Back to sleep" campaign. National Institute of Child Health and Human Development. http://www.nichd.nih.gov/sids. Accessed March 27, 2009.
