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By Mayo Clinic staffIf you think you may have dilated cardiomyopathy, or are worried about your risk because of a family history, make an appointment with your family doctor. If dilated cardiomyopathy is found early, your treatment may be easier and more effective. Eventually, however, you may be referred to a heart specialist (cardiologist).
Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be prepared for your appointment. Here's some information to help you get ready for your appointment, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to dilated cardiomyopathy.
- Write down key personal information, including a family history of heart disease, stroke, high blood pressure or diabetes, and any major stresses or recent life changes.
- Make a list of all medications, as well as any vitamins or supplements, that you're taking.
- Take a family member or friend along, if possible. Sometimes it can be difficult to soak up all the information provided to you during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Be prepared to discuss your diet and exercise habits. If you don't already follow a diet or exercise routine, be ready to talk to your doctor about any challenges you might face in getting started.
- Write down questions to ask your doctor.
Your time with your doctor is limited, so preparing a list of questions will help you make the most of your time together. List your questions from most important to least important in case time runs out. For dilated cardiomyopathy, some basic questions to ask your doctor include:
- What is likely causing my symptoms or condition?
- What are other possible causes for my symptoms or condition?
- What kinds of tests will I need?
- What is the best course of action?
- What foods should I eat or avoid?
- What's an appropriate level of physical activity?
- How often should I be screened?
- Should I tell my family members to be screened for dilated cardiomyopathy?
- What are the alternatives to the primary approach that you're suggesting?
- I have other health conditions. How can I best manage them together?
- Are there any restrictions that I need to follow?
- Should I see a specialist?
- Is there a generic alternative to the medicine you're prescribing me?
- Are there any brochures or other printed material that I can take home with me? What Web sites do you recommend visiting?
- In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
- When did you first begin experiencing symptoms?
- Have your symptoms been continuous, or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- Do any of your blood relatives have dilated cardiomyopathy or other types of heart disease?
- Cardiomyopathy. National Heart Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/cm/cm_all.html. Accessed July 14, 2009.
- Cooper LT. Definition and classification of the cardiomyopathies. http://www.uptodate.com/home/index.html. Accessed July 14, 2009.
- Maron BJ, et al. Contemporary definitions and classification of the cardiomyopathies: An American Heart Association scientific statement from the Council on Clinical Cardiology, Heart Failure and Transplantation Committee; Quality of Care and Outcomes Research and Functional Genomics and Translational Biology Interdisciplinary Working Groups; and Council on Epidemiology and Prevention. Circulation 2006;113:1807.
- Weigner M, et al. Causes of dilated cardiomyopathy. http://www.uptodate.com/home/index.html. Accessed July 14, 2009.
- Hershberger RE. Genetics of dilated cardiomyopathy. http://www.uptodate.com/home/index.html. Accessed July 14, 2009.
- Podrid PJ, et al. Secondary and primary prevention of sudden cardiac death in heart failure and cardiomyopathies. http://www.uptodate.com/home/index.html. Accessed July 14, 2009.
- Heart failure. National Heart Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/Hf/HF_All.html. Accessed July 14, 2009.
- Hare JM. The dilated, restrictive and infiltrative cardiomyopathies. In Libby P. Braunwald's Heart Disease: A Textbook of Cardiovascular Medicine. 8th ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/book/player/book.do?method=display&type=bookPage&decorator=header&eid=4-u1.0-B978-1-4160-4106-1..50067-4&uniq=151686941&isbn=978-1-4160-4106-1&sid=867495152#lpState=open&lpTab=contentsTab&content=4-u1.0-B978-1-4160-4106-1..X5001-8--TOP%3Bfrom%3Dcontent%3Bisbn%3D978-1-4160-4106-1%3Btype%3DbookHome. Accessed July 14, 2009.