Hodgkin's lymphoma (Hodgkin's disease)

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Preparing for your appointment

By Mayo Clinic staff

If it's thought that you have Hodgkin's lymphoma, you may start by first seeing your family doctor or a general practitioner. However, in some cases when you call to set up an appointment, you may be referred immediately to a specialist who treats Hodgkin's lymphoma, such as a hematologist, medical oncologist or radiation oncologist.

Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be well-prepared for your appointment. Here's some information to help you get ready for your appointment, and what to expect from your doctor.

What you can do

  • Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet before testing.
  • Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
  • Write down key personal information, including any major stresses or recent life changes.
  • Make a list of all medications, as well as any vitamins or supplements, that you're taking.
  • Take a family member or friend along, if possible. Sometimes it can be difficult to absorb all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
  • Write down questions to ask your doctor.

Your time with your doctor is limited, so preparing a list of questions can help you make the most of your time together. List your questions from most important to least important, in case time runs out. For Hodgkin's lymphoma, some basic questions to ask your doctor include:

  • What is likely causing my symptoms or condition?
  • Other than the most likely cause, what are other possible causes for my symptoms or condition?
  • What kinds of tests do I need?
  • Is my condition likely temporary or chronic?
  • What is the best course of action?
  • What are the alternatives to the primary approach that you're suggesting?
  • I have these other health conditions. How can I best manage them together?
  • Are there any restrictions that I need to follow?
  • Should I see a specialist? What will that cost, and will my insurance cover it?
  • Will I need a biopsy?
  • Is there a generic alternative to the medicine you're prescribing?
  • Are there any brochures or other printed material that I can take with me? What Web sites do you recommend?

In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.

What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over points you want to spend more time on. Your doctor may ask:

  • When did you first begin experiencing symptoms?
  • Have your symptoms been continuous, or occasional?
  • How severe are your symptoms?
  • What, if anything, seems to improve your symptoms?
  • What, if anything, appears to worsen your symptoms?
  • Has anyone in your family had cancer, including Hodgkin's lymphoma?
  • Have you or has anyone in your family had conditions affecting the immune system?
  • Have you had infections in the past?
  • Have you or your family been exposed to toxins?
References
  1. What you need to know about Hodgkin lymphoma. National Cancer Institute. http://www.cancer.gov/cancertopics/wyntk/hodgkin/allpages. Accessed June 4, 2009.
  2. Overview: Hodgkin disease. American Cancer Society. http://www.cancer.org/docroot/CRI/CRI_2_3x.asp?dt=84. Accessed June 4, 2009.
  3. Gottschalk SM, et al. Overview of Hodgkin lymphoma in children and adolescents. http://www.uptodate.com/home/index.html. Accessed June 4, 2009.
  4. Mauch PM. Clinical presentation and patterns of disease distribution on Hodgkin lymphoma in adults. http://www.uptodate.com/home/index.html. Accessed June 4, 2009.
  5. Horwitz S, et al. Treatment of advanced stage (stage III-IV) Hodgkin lymphoma. http://www.uptodate.com/home/index.html. Accessed June 4, 2009.
  6. Bartlett, NL. Modern treatment of Hodgkin lymphoma. Current Opinion in Hematology. 2008;15:408.
  7. General information about adult Hodgkin lymphoma. National Cancer Institute. http://www.cancer.gov/cancertopics/pdq/treatment/adulthodgkins/Patient. Accessed June 7, 2009.
  8. Ng AK, et al. Late effects of Hodgkin's disease and its treatment. The Cancer Journal. 2009;15:164.
  9. Complementary and alternative therapies. American Cancer Society. http://www.cancer.org/docroot/ETO/ETO_5.asp?sitearea=ETO. Accessed June 7, 2009.
  10. Stages of adult Hodgkin lymphoma. National Cancer Institute. http://www.cancer.gov/cancertopics/pdq/treatment/adulthodgkins/Patient/page2. Accessed June 7, 2009.
  11. Ansell SM (expert opinion.) Mayo Clinic, Rochester, Minn. June 12, 2009. 

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July 11, 2009

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