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Complications
By Mayo Clinic staffBeyond complications for your health, a genetic disorder such as Lynch syndrome brings about many other areas of concern. Your genetic counselor is trained to help you navigate all the areas of your life that are affected by your diagnosis, such as:
- Your privacy. The results of your genetic test will be listed in your medical record, which may be accessed by insurance companies and employers. You may worry that being diagnosed with Lynch syndrome will make it difficult to change jobs or health insurance providers in the future. Most states have laws to prevent use of genetic information by insurance companies. Your genetic counselor or an attorney can discuss the laws in your state and what protections they offer.
- Your extended family. Undergoing genetic testing for Lynch syndrome has implications for your entire family. You may worry about the best way to tell family members that you're undergoing genetic testing. A genetic counselor can guide you through this process.
- Your children. If you have Lynch syndrome, your children have a risk of inheriting your genetic mutations. If one parent carries the genetic mutations for Lynch syndrome, each child has a 50 percent chance of inheriting those mutations.
