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Coping and support
By Mayo Clinic staffChildren with Rett syndrome need help with most daily tasks, such as eating, walking and using the bathroom. This constant care can be exhausting and stressful for families. It is natural to feel overwhelmed at times. Talking about your problems can help relieve your feelings of stress. Arrange for outside help to ease your load.
Many families affected by Rett syndrome care for their children at home, often with the help of outside caregivers who can give parents a break. Other families choose residential care, especially when their children become adults.
Each family and each child with Rett syndrome is different. But connecting with other families facing the same problems can help you feel less alone. Online support and information are available from the International Rett Syndrome Association.
