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Coping and support
By Mayo Clinic staffEven after they're under control, seizures can continue to affect your life. Temporal lobe seizures may present even more of a coping challenge because people may not recognize the unusual behavior as a seizure. Children may get teased or be embarrassed by their condition, and both children and adults may be frustrated by living with the constant threat of another seizure. Poor self-esteem, depression and suicide are increased in people who have repeated seizures. Most states restrict those who've had seizures from driving until they've gone a long time without a seizure. Even recreational activities can be affected, because you can't do certain activities, such as swimming, alone.
You may find it helpful to talk with other people who are in the same situation you are. Besides offering support, they may also have advice or tips for coping that you'd never considered. The Epilepsy Foundation has a network of support groups, as well as online forums for teens and adults who have seizures and for parents of children who have seizures. You can reach them at 800-332-1000 or visit the foundation Web site. You can also ask your doctor if he or she knows of any support groups in your area.
- Temporal lobe epilepsy. Epilepsy Foundation. http://www.epilepsyfoundation.org/about/types/syndromes/temporallobe.cfm. Accessed May 7, 2009.
- Stafstrom CE, et al. Pathophysiology of seizures and epilepsy. http://www.uptodate.com/index/home.html. Accessed April 17, 2009.
- Foldvary-Schaefer N, et al. Epilepsy and epilepsy syndromes. In: Goetz, CG. Textbook of Clinical Neurology. 3rd ed. Philadelphia, PA: Saunders Elsevier: 2007. http://www.mdconsult.com/das/book/body/136248193-3/0/1488/441.html?tocnode=53805069&fromURL=441.html#4-u1.0-B978-1-4160-3618-0..10052-9_4538. Accessed May 8, 2009.
- Seizures and epilepsy: Hope through research. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/epilepsy/detail_epilepsy.htm?css=print. Accessed April 24, 2009.
- Ropper AH, et al. Epilepsy and other seizure disorders. In: Ropper AH, et al. Adams and Victor's Principles of Neurology. 9th ed. New York, N.Y.: McGraw-Hill Medical; 2009. http://www.accessmedicine.com/content.aspx?aID=3632229. Accessed April 22, 2009.
- Seizure disorders. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merck.com/mmpe/print/sec16/ch214/ch214a.html. April 26, 2009.
- Schuele SU, et al. Intractable epilepsy: Management and therapeutic alternatives. Lancet Neurology. 2008;7:514.
- Spooner CG, et al. New-onset temporal lobe epilepsy in children. Neurology. 2006;67:2147.
- Practice parameter update: Management issues for women with epilepsy-focus on pregnancy (an evidence based review): Teratogenesis and perinatal outcomes. St. Paul, Minn.: American Academy of Neurology. http://www.neurology.org/cgi/content/abstract/WNL.0b013e3181a6b312v1. Accessed April 27, 2009.
- Britton JW (expert opinion). Mayo Clinic, Rochester, Minn. May 14, 2009.
